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On HIV:
Science, Medical, Pharmaceutical, Government
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The Way to Wellness
and Healing
Bradford's Essay
On HIV: Science, Medical, Pharmaceutical, Government and Media
Bradford's Essay
On HIV
(Download PDF. Version)

On HIV:
Science, Medical, Pharmaceutical, Government and Media
by Bradford McIntyre

 

 

We may have jumped the gun and put all our efforts into pharmaceuticals when it came to fighting AIDS.

Recognizing the ability of the body to heal has prompted many to choose to combat HIV in a non-medical direction. Often, people are effective in preventing illness for years before drug intervention is ever necessary, or not necessary at all. Others have continued to live without any sign of HIV/AIDS related opportunistic infections or disease. For some who have tested positive, there has never been any virus replicated in their body. Equally so, many people who are on drug treatments have learned to address the importance of diet, exercise, alternative therapies and supplements, mind, body and spirit. Let's not close our minds to what is right in front of us showing endless opportunities. There are opportunities for us to learn, grow and have healthy bodies!

"Health is indeed determined by a wide range of influences beyond the traditional health care system. Opportunities and responsibilities to improve or influence health are shared by everyone, including individuals, communities and governments", says Diane Marleau, former Minister of Health.

In both Canada and the United States, health care systems are being affected by the strains from use and rising costs. Billions are being spent, while people look to the medical profession to care for their illness. There is a whole consciousness that supports disease and we can make an attitude adjustment. If we took a little more care and responsibility for our health and what we put into our bodies, there would be less demand on our health care system. We must not allow ourselves to fall prey to the belief that science and the medical profession have all the answers, nor can we find all our answers in pharmaceuticals. Science, medicine and the use of pharmaceuticals play key roles, but so does the greatest disease fighter on the planet, our immune system.

Those having to make decisions in treatment around choices for healing do not have an easy task. Every person is unique. Each one of us will have different responses to HIV and antiretroviral treatment. There are options and we do have choices. Many have chosen natural healing! Not everyone is OUT publicly about his or her disease and/or treatments and the number if known would be many! In the United States, of those who went to hospitals and sought out medical advice, three times as many people chose alternatives.

It seems there is only money in illness and no money in wellness!

Provincial Health Minister, Colin Hansen has said that the Liberal government has made a commitment to fund health care on the basis of evidence-based medicine. He stated, "There is certainly a lack of research around alternative therapies and whether or not they do show evidence of better outcomes."

There are no shortages of researchers exploring the positive benefits of vitamin supplementation and complementary and alternative medicine. However, government funding very often never materializes! Without government funding, how can there be any 'evidence-based' medicine for complementary therapies? Government lags in funding, while science and the general public already realize the benefits of complementary therapies.

Funding, education, implementation of complementary therapies in our health care and recognizing the importance of naturopathic physicians and securing their place in our health care, is paramount! We should be studying the use of supplements and including them in our health care. Funding is necessary for additional research and fast tracking the implementation of them, providing positive effects for individuals with disease. Saving people's lives! It is the responsibility of governments around the world to include and provide these life-saving, natural alternatives in health care systems and ensure natural supplements continue to be available. With choice there is hope!

People infected with HIV or have AIDS and all those living with a disability need a quality of life that does not undermine their health. There are people dying due to the stress on an already stressed and suppressed immune system. There is added stress due to a lack of funds available to support nutritional diet and good health. Proper nutrition is necessary for HIV infected individuals, as those who eat well feel better compared to those who consume a less than adequate diet. Malnutrition can compromise their ability to fight off infection. We should be making good nutrition a high priority in AIDS treatment! There are people living with HIV who are in constant need of medical attention due to the poor quality of food and water. Water must be clear of micro-organisms and tap water is not fit to drink by people with a suppressed immune system, as they are susceptible to Cryptosporidiosis and Microsporidiosis. There is a need and an added expense of purchasing bottled water for drinking and cooking. The lack of bottled water contributes to their disease. There is a need for affordable housing, providing a comfortable and stress free environment in which to live.

Health care would have a payback in reduced and delayed usage with these provisions in place, as suggested by studies confirming lower survival associated with these! A call for action is necessary. The present situation dictates that these are vital necessities for people living with HIV/AIDS throughout the world! Since many people infected with HIV have neither the health nor energy to work towards creating awareness and change, it is my intention to speak through my experience for those whom I hope will benefit. Ignoring the importance of meeting these needs will bring an ever-increasing cost to our health care systems and us worldwide. A simple exercise in these directions and implementation would have an enormous impact on the fight against AIDS!

My concern and disappointment is directed at the lack of consideration given to the present situation of poverty, poor nutrition, inadequate sanitation and housing for people living with HIV. These issues are of the utmost importance to individuals who are trying to maintain their health and living. The present situation is driving people below poverty, affecting their health and forcing them to live in standards no one would want to experience! People, who have worked and contributed to society, should not be subjected to living in inadequate conditions due to health and inability to work when diagnosed with a life threatening disease!

We are all here together, connected. Nothing is happening to just one of us, but affecting ALL of us!

 

MEDICAL PROFESSION

Individuals may not be having trouble with the virus in their system as much as having some other factor affecting their health.

Those suffering with illness and those who have watched loved ones get sick or die know all too well that many health conditions were either not diagnosed or mis-diagnosed, but it was not HIV causing the problem. In my own situation, this has happened numerous times. The medical profession holds the HIV virus responsible for any and all illness when a patient is diagnosed infected with HIV, using the excuse that a condition is HIV related. It is because of this rampant over diagnosis that little or no search is undertaken to discover what is causing the health problem. Other diseases occur and with a condition in progress or uncontrolled with very little attention given it, this allows for many people suffering and dying! This is not caused by HIV, but from an invasion of bacteria, fungi, viruses and cancers, unknown to those not looking!

More consideration has been directed at eradicating the AIDS virus and not enough attention given to patients as individuals. As well as the attention given to decreasing the viral load and the search for a cure for AIDS, maintenance needs to be addressed. Many have experienced side effects of the drugs, pain, discomfort and prolonged illness because science, medicine and the pharmaceutical companies promote the direct attention to an actual VIRUS, rather than to the greater needs of a suffering person.

If a person who is already experiencing problems with their health is an individual who does not tolerate the drug treatment well, then their side effects mask symptoms of another illness.

For some individuals on HIV/AIDS treatments, there are few or no side effects. Others experience side effects, which undermine their ability to be well. Very often when a patient complains of not feeling well, they are told or led to believe it is all due to HIV or the side effects of the drugs. This has been obvious to many others and myself since the beginning of HIV/AIDS.

In 1993, when I was living in Ottawa, my friends Barry and Bruno, who were a couple, were on vacation in cottage country in southern Ontario. Bruno was having abdominal pain and Barry took him into the local hospital. I guess it might have been obvious the two were gay, but even so, that was no excuse for what took place. The doctors and nurses took one look and decided they would not treat Bruno without an HIV test first, just because he looked gay! Barry was furious and demanded they do something without an HIV test. They checked Bruno over superficially but did not determine what was wrong and sent him home. The next day Bruno was still in excruciating pain and they returned to the hospital. Again, the doctors were assuming Bruno had AIDS and said an HIV test had to be done and without an HIV test they would not treat Bruno.

Bruno and Barry knew something was seriously wrong, but they did not feel Bruno had to do an HIV test. They were sent back to the cottage. Barry made phone calls to Ottawa to members of parliament voicing his outrage with the hospital and demanding something be done. Unfortunately, the following day Bruno had to be taken to the hospital by ambulance. His appendix had burst and the infection was rapidly running throughout his body. An incision was made from his groin to his upper chest and the infection was scraped away. Later an HIV test was done and unaware to both Bruno and Barry, Bruno tested positive for HIV. However, Bruno was not symptomatic for HIV; he suffered from appendicitis!

Bruno recovered but he was never the same and in that same year, Barry called and asked me to go with him to the hospital in Montreal. Bruno was dying. After Bruno died, Barry got tested and discovered he was HIV+ as well. Barry was told to go on AZT and DDI. Barry was perfectly happy and healthy and he never showed any signs of problems with his health before going on the HIV/AIDS medications. On the drugs, he got sick and progressively sicker. He lost his hair and suffered from headaches, fatigue, insomnia, nausea and he lost weight. As he continued with the medication, other drugs were prescribed for the side effects he was experiencing. Barry then developed a severe case of diarrhea, which was diagnosed as being HIV related and/or the side effects of the drugs. It wasn't either of these and Barry went untreated for months. He had food poisoning from salmonella and this was not discovered until it was too late. Barry died while I was visiting him in the hospital!

My friend Bob also had to deal with mis-diagnosis or no diagnosis. He was on AZT for several years when he started to have severe abdominal cramps and diarrhea. Again, nothing was done! This is an experience, which many living with HIV as well as their family and friends can attest to. Bob was not suffering from HIV related problems or side effects of the drugs he was taking. Even when his drug regimen was changed, Bob still complained about the problems he was experiencing. Sadly, Bob was suffering from cancer, which hadn't been diagnosed or treated (a cancer which is treatable). Bob died leaving Buddy, his partner of 13 years, devastated and alone!

Those of us who have been living infected with HIV know many illnesses and death can be attributed to the use of HIV/AIDS medications.

From 1996-1999, I was involved in an ongoing program of the University of British Columbia School of Nursing and St. Paul's Hospital and the Center For Excellence through PWA (Person's With AIDS Society). The program was designed to promote understanding of and an appreciation for the realities of living with HIV related illness. This provided opportunities for student nurses to better understand the needs and care of persons living with HIV/AIDS. Individuals who are infected with HIV volunteered and discussed what it is like living with HIV. While volunteering in this program, I met Maureen who was also a volunteer and HIV+.




...positive attitudes are not simply 'moods'

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